• @[email protected]OPM
      link
      fedilink
      48 months ago

      I started showing signs around 13-14, finally diagnosed at 33. Too bad indeed. I often wonder how my life would have turned out differently if my parents figured this out and took measures. It ended up working out for the most part so far, but damn did it take a long time.

      • @gnurd
        link
        38 months ago

        I feel you. Didn’t get a diagnosis til around 27, but nothing really done about it until 32 or 33 as well. It’s really hard to not feel like a big chunk of your life was taken away, something I really struggle with. Still working a lot out at 43, so here’s to hoping.

        • @[email protected]OPM
          link
          fedilink
          38 months ago

          Exactly, it feels like something was taken. I found it helpful to grieve much like one would grieve the loss of a loved one. Just turned 40, and so much still left to figure out! But everything is looking better, even if just a little bit. I have a lot of hope.

          • @gnurd
            link
            28 months ago

            That’s a pretty good idea honestly. Thanks for a bit more insight.