Hi all,

I’ve had ulcerative colitis for 20 years now and mostly stay in remission with only 4 hospitalizations total. Still, I deal with UC difficulties on a regular basis, but don’t know anyone in my daily life that has IBD, so I hope this community takes off to have a community of other IBDers to provide and receive support. I’ll do my part to try to stay active here.

  • MorganCS (she / her)@lemmy.worldM
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    1 year ago

    We all suffer in our own ways, huh. I take humira every 2 weeks, and Lialda (mesalamine tablets) between 2 and 4 pills daily. I increase my doseage if I’m feeling crappy for a couple of days, and If I get to 4 without any improvement, that’s when I contact my GI doc.

    Have you tried your thigh for the shot? I usually cycle through the 4 tummy shot zones, and 4 leg zones

    I too am Autistic and ADHD too. I find it really interesting that there is a big correlation between neruodivengency and IBD issues.

    If you do go on remicade, let me know. I was always hesitant to do so simply because of the time requirements.

    • BOMBS@lemmy.worldOP
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      1 year ago

      Hi! Yes, the therapist that first pointed out my autistic traits to me said that the GI system has lots of nerve cells, so I think there might be something to out brain styles and IBD. Interestingly, my flares are all associated with prolonged, highly stressful experiences.

      I used to do the thighs before. It’s a different deeper pain since it’s in the muscle. I haven’t injected there in years, but I remember preferring the lighted shallow pain in the abs. I could try the thigh again at my next dose just to check. Thanks for the suggestion 🙂

      I’ll definitely make a post if I go on Remicade 👍