049 - Will low-dose NALMEFENE work better than low-dose NALTREXONE for reducing brain inflammation?
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Here is a quick update on my proposal to test low-dose nalmefene for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). There is some evidence that...

Posting before I’m too lazy…

I asked my Massachusetts Rheumatologist if I could try LDN for Fibromyalgia and she said not for off label use.

Guess I’ll just suffer.

  • FoxyFerengi@lemm.eeEnglish
    4·
    18 days ago

    That’s crazy. My VA primary care doctor let me try LDN for fibro a decade ago. It didn’t help me, but I have a friend who tried it for EDS and they are able to function most days because of it. Are they not offering you an alternative? (Gabapentin is what I have been on, although I know it doesn’t work for everyone)

    • Eeyore_SyndromeOPEnglish
      1·
      16 days ago

      Gabapentin and Amitriptyline made me sucidial and extra special dissociative/depersonalized did help nerve pain and migraines tho lol.

      Drs didn’t wanna try any other similar meds like Lyrica or Nortriptyline after.

      I’m gonna attempt getting a new neurologist since my last one ghosted me and my rhumo is useless…

      I went in on that one too hard I suppose…I mean my father had just died from brain cancer and I was worried about my bad migraines, was why I was seeing the neuro before I also got Fibro DX.

      I do have my state Medical card so there’s that at least. But sux being in pain/sensations 24/7. I’m only 6 years in now.