Hello all, my daughter is eight years old. She is high functioning autistic. One trouble she has is she will either misunderstand social situation’s or become easily triggered. When these things happen her mind becomes disorganized and she will have meltdowns. She will not be able to gather her thoughts and ends up yelling at the other person (usually her older brother) but not in a way that is not productive to solving the problem…

I have talked to her about calm down techniques, but she is asking if there is ways that people with autism specifically handle these things. I know how I handle them, but I am coming from neurotypical perspective and even though I have done a lot of reading on this topic I feel it would be a good idea to reach out to the community to see if you all have any advice for her.

So what do you all do in a high stress situation where your brain just wants to yell? What helps sooth and calm, sooth, and organize thoughts?

  • ScruffyDux@lemmy.world
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    1 year ago

    The breakthrough for me was realizing that in many cases what is happening is primarily a medical, neurological issue, not a primarily emotional issue. This means only neurologically focused solutions are properly effective.

    An autistic nervous system is prone to over activation, and what a lot of people don’t know is this can cause nerve cell death through a process called excitotoxicity.

    Not enough research has been done on meltdowns, but my theory is what’s really happening is excitotoxicity kicks in, nerves start dying, the body recognizes injury is occurring, and goes into a fight or flight state to try and defend against the source of the excitatory damage.

    The key is to know how to deactivate the over-active nerves. And the easiest, fastest way to do that is through triggering endorphins. Endorphins will quickly switch off the nerves that are dying from being switched on too long.

    Endorphins can be triggered quickly by favorite music, and vigorous exercise on the spot. Perhaps your daughter might have headphones at the ready with her favorite songs, and quick access to a jump rope or trampoline or other favorite physical game.

    Btw pain also causes endorphin release, and I believe that is why so many of us self harm during meltdowns. But there are better ways to trigger the same physiological response.

    In my own case I have tested this method many times by putting on loud music and lifting weights. I’ve halted meltdowns multiple times now this way.

    Another option is exorphins, which come from foods that break down in the body to function similarly to endorphins.

    These include chocolate, wheat products (gliadorphin), and soy products (soymirphin). When your daughter is old enough, caffeine is also in the list. I think autistic people intuitively feel the nerve calming effect of exorphins and that’s part of why we crave “beige” foods.

    These things have to be tested individually per person though, because sometimes two autistic people can have complete opposite reactions to the exact same inputs.

    But I’m confident if you can find endorphin triggers for your daughter, that she can learn to reach for by herself, and help her learn to recognize when her nervous system is in an over activated state, it will be hugely helpful. If you can get endorphins/exorphins taking action during that rising, rumbling phase you can often stop the meltdown, and if not you can reduce the intensity.

    Also, once you understand the mechanics of what’s going on you stop feeling like you’re bad or weak person falling to be in control of your emotions. Instead you see and feel the truth, that you have a neurological disability that needs to be handled as a physiological issue, with kindness to yourself in order to preserve your own neurological health.

    That would be an amazing thing for an autistic person to realize early in life, instead of carrying decades of guilt and shame. And I think it could potentially prevent a lifetime of cumulative nerve damage from compounding into chronic health issues later.

    I really hope this helps, and feel free to ask me for any more information or related studies, resources etc.

  • mutilated_sphincter@lemmy.world
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    1 year ago

    I got diagnosed at the age of 30, at the very mild end of the spectrum. I have learned to “store up” the frustration, and then go listen to metal when I have me-time later on.

  • pizza_rolls@kbin.social
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    1 year ago

    I’m autistic. You’re describing overstimulation. She is only 8, and it will take time for her to understand what is overstimulating and how to appropriately deal with it. When I am in an overstimulating situation I take breaks, for example taking a walk away from a party.

    The thing about being overstimulated is it’s not something where you just take deep breaths and calm down and feel better magically. You need to be removed from what’s overstimulating you. Imagine being in a room of people who are all screaming at you and you are being pushed to continue to function despite that. That’s what being overstimulated is like.

    Another important thing to keep in mind is not to push her to act neurotypical. When I’m around a lot of people I reach a point where I “shut down”. I am still actively listening but I am quiet and over talking. Make sure you and other family members are not pushing her to be talkative if she wants to be quiet. And assist her being able to take breaks or allow her to acknowledge she is overstimulated and remove herself from the situation. A huge problem, that I have experienced myself and seen other families do with autistic kids, is force them to act “normal” in overstimulating situations. That’s a great way to lead to a meltdown. If her siblings are neurotypical they might be doing this because they don’t understand.

    Sometimes though things are out of your control or it sneaks up on you and you NEED to meltdown to feel better. She needs to figure out a way she can do that without taking it out on someone. Go to her room and cry, run around outside, yell outside, something. All of this is up to her to decide and figure out since it varies per person, but you can help her by reminding her she needs to redirect her meltdown and giving her the space to do so.

    And just FYI, it’s not high functioning or low functioning anymore. Autism is now described by the level of support someone needs, because someone can appear “high functioning” in certain scenarios but need a lot of support in other ways.

  • ashethursday@lemmy.world
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    1 year ago

    I struggle with the same thing and what helps me is having tools that I can use to be “alone-ish” Sunglasses, noise cancelling headphones, or physically going to sit somewhere alone like on the floor. Helps me calm down faster. I wish I had some secret to calm myself and just keep going but I’ve tried a lot of things and it always takes time. Another method to reduce my meltdown duration is EARLY WARNING. Once I realize it’s coming I can use havening techniques or take a break. My service dog alerts me to this too and he can use deep pressure therapy to calm me down

  • webghost0101@lemmy.fmhy.ml
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    1 year ago

    My advise is to try to really understand the details in what causes the trigger. Not just on how it appears on a neurotypical surface level.

    Think of it as trying to understand game mechanics.

    In the case of social misunderstanding, is it:

    • certain topics
    • a specific word
    • the tone
    • the feeling of being misunderstood
    • the sensation of certain emotions
    • lingering emotions/feelings that where already present.

    Also play close attention to different behavior when facing similar triggers, they can tell a lot about the root issue.

    • Does it happen more frequently after school, in weekends, in public.
    • What other sensory stimulation are around (tv, tl lights, itching clothing.)

    Are there situations where the trigger is present but she does manage. Ask yourself questions why can she/i manage now but not other times.

    Once you truly really understand what makes you tik (this can take years as things can have many layers) it becomes much easier to navigate and rationalize your life.

    • RoseyCat@lemmy.worldOP
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      1 year ago

      Her main triggers are interactions with her brother, doing chores, or discipline. These things are unfortunately not avoidable. I do try to help mentally prep her for chores and I’m calm with discipline.

      • webghost0101@lemmy.fmhy.ml
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        1 year ago

        My suggestion is for her to look deeper then that.

        I ll provide some examples. Of course take in mind i am an adult dad myself so my sense of responsibility and experience with autism is not the same as an 8yo child. Many of the examples have gotten me to “meltdown” though. And of course these examples are personale to me and may not apply to your daughter.

        Chores: i am holding something i need to trow in the trash but the trashcan is full.

        a robust structure to make sure the trashcans are emptied on a schedule goes a long way in avoiding this

        I am sweeping but there are items on the floor.

        first check the floor and remove any obstacles may sound so normal it feels silly now but i was already an adult when i learned this and it felt like a magic.

        I find myself in need of tool x to do my choir but i cant find it.

        collect all required tools and items before proceeding

        I neglected to clean the house for to long, the clutter creates massive visual overstimulation. I cant find my cleaning tools between the clutter. I cant remove obstacles from the floor because there is no space left to put them. My mind tells me to just kick and trow everything I perceive as being in my way and just writing this passage in text gives me ptsd flashbacks.

        STOP do something else in a sensory calm area. Then ask someone for help to create a centralized empty spot, use this spot like a food plate. Only put on the plate what you can handle. Take more if the plate is empty.

        Discipline is more on you then her. Make sure to prioritize the goal, which is to learn from mistakes. Don’t fall into the hole of using the same discipline that works for others. Some people respond well to punishments. I did not, they just made me resent authority. Often i did not understand what i should have done instead or i made an honest mistake. I fared much better with a clear understanding of what exactly happend.

        Which brings me to social misunderstandings. I have fought my wife over terminology. I draw a hardline between accidentally causing an accident. And being at fault for something. Simply hearing that someone is at fault when it was a non intentional mistake deeply infuriates me to this day. However mature discussing this with my wife revealed my stance really isn’t all that different from the rest of society. I still believe feeling of guilt and trying to fix damage is in order if ypu make a mistske. Its specifically the words “at fault” or “x hurt y” which my mind perceives as “with intend” I cant really know with her brother but it could be their fights are about similar misunderstanding of some words. It does strike me as an area of opportunity to learn if talking to one person causes a meltdown and another does not.

        Some final general advice. Being too overstimulated is almost always a good reason to stop doing something. Pushing yourself to far this way can create dangerous situation and routinely being overstimulated will create a habit of avoidance. Always have a backup space that is low sensory to retreat to. Its much easier to proceed when your head is calm and clear and often the fresh energy will more then make up for lost time.

        Good luck, both for your daughter aswell as you her parent. It will often not be easy for either of you. But over time, the gained experience and mutual understanding not only will make things easier but will create opportunities to cultivate her mind to achieve things no neurotypical ever could.

  • FollyDolly@lemmy.world
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    1 year ago

    After reading all the other comments full of great advice, I wanted to mention I technique I use. If I’m really struggling to get through something I pretend I am a diffrent person. Like an actor. There is a great deal of recovery time, but in a pinch, difficult conversations, job interviews, and such, I can pretend to be another person who handles things flawlessly. Maybe do some roleplaying? Invent a superhero persona for her she can slip into when she needs to.

    And thanks for being so understanding of your daughter. I had to figure everything out on my own!

    • RoseyCat@lemmy.worldOP
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      1 year ago

      That’s a really cool idea. She’s a bit young especially mentally but we will try that in the future.

      There is for sure more understanding of autism now than there was when you were a kid, and unfortunately some parents just don’t understand or learn about autism.

  • EfficaciousSkink@lemmy.world
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    1 year ago

    My high-functioning son is 10 and and I would like your daughter to know it can get better. Keeping calm is a skill you can develop with time and patience.

    Being outside away from people and in nature seems to help calm my son quite a bit. He is learning to be less triggered but sometimes he just needs time away until he can collect himself. Pets and stuffed animals seem to help him, too.

    • RoseyCat@lemmy.worldOP
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      1 year ago

      I remind her that it will get easier as she gets older. Being a kid can be very difficult. I’ll get her a stress stuffed cat to hug if she get upset,