Wow. I have never had someone actually truly believe me and give me something I need right away. First off I should say my neurologist is convinced I have CIDP and my reactions from my spinal tap and blood patch 3 months could be a cause to my reaction

So I went yesterday to my neurologist to go over my muscle biopsy report along with my nerve pain from my blood patch. My muscle biopsy shows denervation a long with other tests supporting CIDP.

So, when I told my neurologist about my nerve pain he thinks it could be my body just reacting poorly to any sort of trauma. Not only that, but where I got my muscle biopsy is still a tiny bit swollen 6 weeks later which he thinks is also a reaction of my body being in overdrive. His clinic is connected to a infusion clinic. They work together. So, he told me he is sending in an emergency solumedrol 500mg infusion for right then and there at the apt so I got it then for an hour, then I’m going in today, and tomorrow for more infusions.

I should feel amazing about this but you know, pain messes with your mind and I am happy but it doesn’t last long. Regardless, my neurologist truly believes me, didn’t question it, and acted right away. I’m really hoping this helps because my nerve pain and low back pain can be unbearable

So he basically put me on the emergency arachnoiditis protocol.

  • girl@lemm.eeEnglish
    4·
    1 year ago

    Congrats OP! Hold onto that doctor and never let him go lol, the value of a doctor who actually listens cannot be overstated

  • BD1sHappyFeet@lemm.eeEnglish
    3·
    1 year ago

    I’ve been wondering how you were doing. Hopefully this will help something at least! I finally got to see the movement disorder specialist and he decided my muscle tremors were a side effect from medication. That I’ve been on for years and haven’t changed recently. bangs head against wall Back to square zero! I really hope this works out for you. Keep us posted.

      • BD1sHappyFeet@lemm.eeEnglish
        1·
        1 year ago

        I’ve been on Cymbalta for years with no problems. If I had an odd reaction during the first month or after six months or so, I could understand. After years though, same company generic, just seems unlikely to me. 😕