• 0 Posts
  • 26 Comments
Joined 1 year ago
cake
Cake day: June 25th, 2023

help-circle







  • Holy shit, my friend. I don’t fall but sometimes I get the strangest sensation when walking, like the certainty that I’m doing Walking wrong somehow and what I’m doing is Not How Walking Is Supposed To Work. If that makes any sense at all.

    When I tense up, I tend to notice when I reach the point of my back is arched up as high as I physically can. I’ve literally changed position from normal laying on my back to what it looks like when you see someone get hit with a defib on tv. Without even being aware of it. Stupid muscles.

    Percocet was my jam when I was going through chemo. I think I was probably high about 90% of the time for a full six months, which was infinitely better than chemo pain. I’m taking gabapentin 600 now, mostly just to control the pain from my sciatic nerve. I did a steroid epidural last year which knocked out that pain completely for a solid year, but now that it’s worn off my spinal surgeon doesn’t want to do another one until we find out what else is going on. I understand that, but also pain! Ugh.

    You’re super young to have all this going on. I’m almost twice your age. I hope they get some answers for you soon and a reasonable pain management solution. Have you tried pot? Idk what the laws are like where you are. I have my medical card so I can get it, but it’s all out of pocket because insurance won’t cover it. It has helped me some, but it’s hit or miss.


  • Omg. I’ve never come across someone else with my same weird body shit. I’m about to pick your brain.

    The full body twitches. What the hell is that‽ It started with just my legs and only when laying down. At this point it’s gone to my entire body, when I’m relaxed. Not to be confused with when I suddenly realize that every muscle is super tense. I’ve done scans of my entire back, normal other than two degenerate discs. Blood work, normal. Thyroid, normal. Nerve conduction tests, normal. I have an appointment with a movement disorder specialist next month. Wtf is this? Or anything I should specifically check for? I’m so damn tired of going from one doctor to another to get the same damn answer: they don’t know.

    I’m really sorry the spinal tap has put you in hell.